Pilot Decision Making Tool for GP’s (UK)

I got word recently that there is a pilot decision making tool for GP’s in the UK going out this year. This is to aid Dr’s to make a diagnosis in dementia in younger people. I have looked at a copy of the tool in question and its amazing.

I think back to how I got diagnosed and what a fight I had to get anyone to believe that there was anything wrong because of my age at that time. 45 …… Stress and depression were bantered about and although I was under stress with my job I knew my signs and symptoms weren’t caused by stress.

This tool is a long time in coming and I am glad its here to help new patients my age. Hopefully it will help Dr’s not put everything in a box as well.

At the moment if I have to see my Dr and I do try not to, the first thing they say is ” How do you know what you have is nothing to do with your dementia?” As if to say, now when you have anything wrong its the dementia’s fault and we can’t help you!!!

This response is very frustrating and it takes all my effort not to walk out and never go back for this is what I really want to do. Last time I went, they blamed the symptoms of my menopause on the dementia!!! What!! Lol!! Then they took note when I told them what my symptoms were.

I have to say on a positive note that the nurses and nurse practitioner are fantastic and I usually see Sue over the Dr’s any day. Sue always asks how I am coping with my dementia after i have spoken to her about whatever I have gone there for which shows she cares.

Hopefully this new tool will help my GP’s as well.

(The link to the tool is here https://www.youngdementiauk.org/gp-decision-making-tool

There is a feedback survey too on the webpage & all comments would be gratefully appreciated so the final version of the tool can be made the best it possibly can be)

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Power

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POWER

The mind is a powerful tool
People have the power
But sometimes they are a fool
Watching time by the hour

Will it or won’t it?
I can hear their minds ticking
Then people want to quit
Cause it beats sticking

To whatever it is they are fighting
But in life, you have to remain positive
As life can be exciting
Even if your mind is a little less cognitive

So what if you do have dementia
Don’t let it stop you from living
You may have started to have dyslexia
But life is always about giving

We all have a power
It’s just how we use it
We can be beautiful like a flower
Even if our brain isn’t fit

It has to be believed
That we can fight anything
That life can be achieved
You can even go snorkeling

Just believe and have faith
That joy can be seen
Some people show their wraith
Whilst others make a scene

But it’s because they don’t understand
That we all have a choice
That life can be grand
And we all have a voice

Copywrite Tracey Shorthouse 2016