We only have one life, and our life is short compared to the universe, so we have to make the best of it. I strive to do the best I can by always thinking on the positive over the negative no matter what.
When you have a condition, you have to learn to adapt and believe that you can get through it. Thought is a powerful tool, and if you believe it enough , you will. I believe that I will have at least 20 – 30 years ahead of me before my dementia takes hold of me, and I firmly believe that.
But you must NEVER GIVE UP on your life. The minute you do, then the condition takes over and you will lose. Why should that win over your life which is so precious.
When I first had trouble with writing, and remembering and finally got my diagnosis, I couldn’t use a computer very well. I used to in the old days but over time my coordination wasn’t very good. I couldn’t use the keyboard and keep looking at the screen, all the words kept jumbling up. But because I started to write poetry and it was easier to put it on the computer than handwriting it, I persevered and now can use a keyboard as fast as I used to be able to. You just need to push yourself and believe you can do it.
I don’t want to give up on skills that I used to have so I make myself do things, no matter how hard it is sometimes.
I have started doing on line courses which are free because I enjoy learning new stuff. Always did when I was a nurse and I know i can’t retain information now and I can’t remember a lot of what is said to me but at the time I like to learn something new and who knows that it might help my brain adapt, and I might remember bits of it. I don’t believe in the word can’t.
Sometimes my speech is affected especially when I get tired, its like I have no coordination over my tongue and I can’t always remember the words but I like to persevere to get the words out if I can. I hear of people who give up talking because its exhausting trying to speak. I don’t want to do that so I will try as much as I can. My friends always ask me if I want them to help say the word.
Last year I attempted to walk 44km for charity. I managed to walk 26 km in the end as I was poorly on the day but it was still an achievement for me.
We all need to FIGHT FOR WHAT WE BELIEVE IN.
And we all have bad days. Everyone does. So if you do something that isn’t quite right, or you can’t remember something, or its just a bad day. Don’t give up at the first hurdle and think your condition is getting worse, because there is always tomorrow.